00000nam 2200000zi 4500 9.869064 CaOODSP 20221107162747 m o d f cr ||||||||||| 190228e201902##onc ob f000 0 eng d CaOODSP eng rda CaOODSP n-cn--- XC62-1/1-421-22E-PDF Canada. Parliament. House of Commons. Standing Committee on Health. Canadians affected by rare diseases and disorders : improving access to treatment / Bill Casey, chair. Improving access to treatment [Ottawa] : House of Commons, Canada = Chambre des communes, Canada, February 2019. 1 online resource (vii, 44 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier Report of the Standing Committee on Health ; 22nd report, 42nd Parliament, 1st session "February 2019." Issued also in HTML format. Issued also in French under title: Améliorer l’accès aux traitements pour les canadiens atteints de maladies et de troubles rares. original published on: 2019/02/28; published on: 2019/05/09. Includes bibliographic references. "According to Health Canada, rare diseases are life-threatening, debilitating or serious and chronic conditions that affect a small number of individuals. Approximately one million Canadians are affected by rare diseases. These diseases often appear at birth or emerge in early childhood. One-third of children with rare diseases die before their fifth birthday. For 94% of these conditions, there is no treatment available"--Summary, page [1]. gccst Health care gccst Diseases Casey, Bill, 1945- Améliorer l’accès aux traitements pour les canadiens atteints de maladies et de troubles rares / (CaOODSP)9.869065 Report of the Standing Committee on Health ; 22nd report, 42nd Parliament, 1st session. (CaOODSP)9.507061 PDF 6.23 MB https://publications.gc.ca/collections/collection_2019/parl/xc62-1/XC62-1-1-421-22-eng.pdf HTML N/A https://www.ourcommons.ca/DocumentViewer/en/42-1/HESA/report-22