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043 |an-cn---
0861 |aXC62-1/1-421-22E-PDF
1101 |aCanada. |bParliament. |bHouse of Commons. |bStanding Committee on Health.
24510|aCanadians affected by rare diseases and disorders : |bimproving access to treatment / |cBill Casey, chair.
24630|aImproving access to treatment
264 1|a[Ottawa] : |bHouse of Commons, Canada = Chambre des communes, Canada, |cFebruary 2019.
300 |a1 online resource (vii, 44 pages)
336 |atext|btxt|2rdacontent
337 |acomputer|bc|2rdamedia
338 |aonline resource|bcr|2rdacarrier
4901 |aReport of the Standing Committee on Health ; |v22nd report, 42nd Parliament, 1st session
500 |a"February 2019."
500 |aIssued also in HTML format.
500 |aIssued also in French under title: Améliorer l’accès aux traitements pour les canadiens atteints de maladies et de troubles rares.
500 |aoriginal published on: 2019/02/28; published on: 2019/05/09.
504 |aIncludes bibliographic references.
520 |a"According to Health Canada, rare diseases are life-threatening, debilitating or serious and chronic conditions that affect a small number of individuals. Approximately one million Canadians are affected by rare diseases. These diseases often appear at birth or emerge in early childhood. One-third of children with rare diseases die before their fifth birthday. For 94% of these conditions, there is no treatment available"--Summary, page [1].
69207|2gccst|aHealth care
69207|2gccst|aDiseases
7001 |aCasey, Bill, |d1945-
77508|tAméliorer l’accès aux traitements pour les canadiens atteints de maladies et de troubles rares / |w(CaOODSP)9.869065
830#0|aReport of the Standing Committee on Health ;|v22nd report, 42nd Parliament, 1st session.|w(CaOODSP)9.507061
85640|qPDF|s6.23 MB|uhttps://publications.gc.ca/collections/collection_2019/parl/xc62-1/XC62-1-1-421-22-eng.pdf
8564 |qHTML|sN/A|uhttps://www.ourcommons.ca/DocumentViewer/en/42-1/HESA/report-22